beyond chronic illness
Fibromyalgia Australia (Fibro Cwebs link) works through stakeholder partnerships to improve care for Australians living with Fibromyalgia and Complex Pain Syndrome.
Fibromyalgia Australia endorses a holistic, multisystem, integrated management approach to care. This provides a balance of the best of medicine—care planning integrated with self management programmes that provide accurate FMS information. These enable people to make informed health decisions and work in partnership with their health providers towards prevention, wellbeing, monitoring and the acquisition of life skills.
For further information on management refer to "How To Treat Fibromyalgia" November 2012 Australian Doctor
The Australian Collaboration Project for Fibromyalgia Best Practice and Education established in 2000, is a national alliance of agencies working to provide Australians with current best practice information on Fibromyalgia Syndrome (FMS).
Since 2000 the team has facilitated participation in shared care chronic disease management initiatives, monitoring health outcomes and improving information on the management of fibromyalgia.
As fibromyalgia is a complex multifaceted condition, intervention by health practitioners needs to be tailored to the individual's experience. Currently research is underway to categorise different subsets of FMS.
Appropriate pain management will enable people to better participate in tailored multidisciplinary management programs.
Evaluated quality management programs are now available to help providers and patients work together in "team care arrangement" through tailored shared care pathways that can be modified regularly according to health outcomes. Just like diabetes monitoring and feedback are fundamental to achieving the best health outcomes and quality of life.
"How To Treat" section: Fibromyalgia syndrome Australian Doctor, 6 June 2008
"How To Treat" section: Fibromyalgia syndrome Australian Doctor, 23 November 2012
European evidence based recommendations for the management of Fibromyalgia Syndrome Eular abstract. Extended report from Ann Rheum Disease 2008;67: 536-541 doi:10.1136/ard.2007.071522. Includes "Nine recommendations for the management of fibromyalgia syndrome developed using a systematic review and expert consensus".
Canadian Fibromyalgia Syndrome: A Clinical Case Definition and Guidelines for Medical Practitioners. An Overview of the Canadian Consensus Document. Bruce M Caruthers, M I van de Sande, 2006 (download PDF 2.6MB)
Adopted by Australian consumer groups because it incorporates the multidisciplinary approaches to management to inform multidisciplinary approaches for primary care providers.
The full 130 page publication may be downloaded from Fibromyalgia Guidelines – The 2004 Canadian Consensus.
"Guideline for the management of fibromyalgia syndrome pain in adults and children (2008)" is available at Guideline Central.
Cochrane Reviews: search fibromyalgia
The Australian Collaboration Project for Fibromyalgia Best Practice and Education is working to identify and collate information sheets to support Australian Primary Care providers. Please Contact Us for further information.
The Australian Collaboration Project facilitates fibromyalgia specific self management programs. Chronic Disease Self Management (CDSM)
The Campbell CFIDS and Fibromyalgia self help library provides an extensive range of articles providing information on skills and support to help people "take charge".
Australian Rheumatology Association Patient Information sheets. The Australian Rheumatology Association (ARA) and Arthritis Australia provide easy access patient information sheets on fibromyalgia.
Fibromyalgia specialist physiotherapists can help you with a full assessment and an individually tailored program. The Australian Physiotherapy Association can help you "find a physio".
Australian Association of Occupational Therapists can help you "find an OT".
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Core to good health outcomes are appropriate assessments and monitoring.
For initial and subsequent assessment of symptom domains and function, a Fibromyalgia Impact Questionnaire is available.
The Campbell Fibromyalgia Self Management programme provides a range of monitoring tools.
Fibromyalgia Information Foundation: www.myalgia.com
Arthritis Research and Therapy (see Biology and Therapy of Fibromyalgia review series): www.arthritis-research.com
The Arthritis Research Campaign: www.arc.org.uk
Fibromyalgia Network (US): www.fmnetnews.com
American College of Rheumatology: www.rheumatology.org
Arthritis Foundation (US): www.arthritis.org
Please Contact Us for further information.